The biggest strength I’ve discovered during this time is my skills to advocate. And also the same for my children — their skills to advocate for themselves and to stand up for themselves and also to stand up for each other.

Marisa lives in Michigan with her three children ages 24, 16, and 6. The family lives in a remote area which limits their access to services. As of November 2021, Marisa had to step back from work to be able to care for her youngest son who has Duchenne Muscle Dystrophy. Although she has sometimes struggled to find respite care and resources for her family, she’s found strength in seeing her family rise to the challenges and be there for each other. 

This video was produced by the Robert Wood Johnson Foundation.